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ATTENTION DEFICIT
HYPERACTIVITY
DISABILITY

CEREBRAL PALSY

 

 

A.D.D. Warehouse

American Academy for Cerebral Palsy &

300 Northwest 70th Avenue, Suite 102

Developmental Medicine (AACPDM)

Plantation, FL  33317

6300 North River Road, Suite 727

800-233-9273

Rosemont, IL  60018

www.addwarehouse.com

847-698-1635

 

www.aacpdm.org

CHADD

 

8181 Professional Place

United Cerebral Palsy Association

Landover, MD  20785

1660 L Street NW, Suite 700

800-233-4050

Washington DC  20036

www.chadd.org

800-872-5827

 

www.ucpa.org

Attention Deficit Disorder Association

 

1788 Second Street, Suite 200

CHRONIC ILLNESS

Highland Park, IL  60035

 

847-432-2332

Candlelighters Childhood Cancer Foundation

www.add.org

PO Box 498

 

Kensington, MD  20895

AUTISM & PERVASIVE DEV. DISEASE

800-366-2223

 

www.candlelighters.org

Autism Research Institute

 

4182 Adams Avenue

Families of Children Under Stress (FOCUS)

San Diego, CA  92116

3050 Presidential Drive, Suite 114

619-281-7165

Atlanta, GA  30340

www.autism.com/ari

770-234-9111

 

www.focus-ga.org

Autism Society of America

 

7910 Woodmont Avenue, Suite 300

Guillain-Barre Syndrome Found. International

Bethesda, MD  20814

PO Box 262

800-328-8476

Wynnewood, PA  19096

www.autism-society.org

610-667-0131

 

www.guillain-barre.com

Center for the Study of Autism

 

PO Box 4538

CYSTIC FIBROSIS

Salem, OR  97302

 

www.autism.org

Cystic Fibrosis Foundation

 

6931 Arlington Road

International Rett Syndrome Assn.

Bethesda, MD  20814

9121 Piscataway Road

800-344-4823

Clinton, MD  20735

www.cff.org

800-818-7388

 

www.rettsyndrome.org

 

 

 

Asperger’s Syndrome

 

www.aspennj.org

 


DOWN SYNDROME

FETAL ALCOHOL SYNDROME

 

 

The Assoc. for Children with
Down Synd.

Family Empowerment Network (FEN)

4 Fern Place

610 Langdon Street, Room 517

Plainview, NY  11803

Madison, WI  53703

516-933-4700

800-462-5254

www.acds.org

www.dcs.wisc.edu/pda/hhi/fen/

 

 

National Down Syndrome
Congress (NDSC)

National Org. of Fetal Alcohol Synd. (NOFAS)

1370 Center Drive, Suite 102

216 G. Street NE

Atlanta, GA  30338

Washington DC  20002

800-232-6372

202-785-4585

www.ndsccenter.org

www.nofas.org

 

 

National Down Syndrome Society

PREVLINE:  Prevention Online

666 Broadway

11426-11428 Rockville Pike, Suite 200

New York, NY  10012

Rockville, MD  20852

800-221-4602

800-729-6686

www.ndss.org

www.health.org

 

 

EPILEPSY

FRAGILE X SYNDROME

 

 

American Epilepsy Society

FRAXA Research Foundation

342 North Main Street

45 Pleasant Street

West Hartford, CT  06117

Newburyport, MA  01950

860-586-7505

978-462-1866

www.aisnet.org

www.fraxa.org

 

 

Epilepsy Foundation

National Fragile X Foundation

4351 Garden City Drive

PO Box 190488

Landover, MD  20785

San Francisco, CA  94119

800-332-1000

800-688-8765

www.efa.org

www.fragilex.org

 

 

Intern. League Against Epilepsy

GENETIC SYNDROMES

avenue Marcel Thirty 204, B-1200

 

Brussels, Belgium

Howard University Cnt. for Sickle Cell Disease

www.ilea-epilepsy.org

2121 Georgia Avenue NW

 

Washington DC  20059

 

202-806-7930

 

www.huhosp.org/sicklecell

 

 

GENETIC SYNDROMES

HEARING, SPEECH & LANG.

 

 

National Tay-Sachs & Allied Dis. Assoc.

American Speech-Lang.-Hearing Assoc.

2001 Beacon Street, Suite 204

10801 Rockville Pike

Brighton, MA  02135

Rockville, MD  20852

800-906-8723

800-638-8255

www.NTSAD.org

www.asha.org

 

 

Prader-Willi Syndrome Association

Deafness Research Foundation

5700 Midnight Pass Road

1050 17th Street NW, Suite 701

Sarasota, FL  34242

Washington DC  20036

800-926-4797

www.drf.org

www.pwsausa.org

 

 

International Hearing Society

Support Org. for Trisomy 18, 13 & Related

16880 Middlebelt Road

Disorders (SOFT)

Livonia, MI  48154

2982 South Union Street

www.insinfo.org

Rochester, NY  14624

 

800-716-7638

National Center for Stuttering

www.trisomy.org

200 East 33rd Street

 

New York, NY  10016

Tourette Syndrome Association

800-221-2483

42-40 Bell Blvd.

www.stuttering.com

Bayside, NY  11361

 

718-224-2999

 

www.tsa-usa.org

Nat. Deaf Ed. Network & Clearinghouse

 

Gallaudet University

HEARING, SPEECH & LANG. IMPAIRMENTS

800 Florida Avenue NE

 

Washington, DC  20002

ADARA

202-651-5031

PO Box 727

www.clerccenter.gallaudet.edu

Lusby, MD  20657

 

www.adara.org

Self Help for Hard of Hearing People (SHHH)

 

7910 Woodmont Avenue, Suite 1200

Alexander Graham Bell Assoc. for the Deaf

Bethesda, MD  20814

3417 Volta Place NW

301-657-2248

Washington DC  20007

www.shhh.org

202-337-5220

 

www.agbell.org

Signing Exact English Center

 

PO Box 1181

American Society for Deaf Children

Los Alamitos, CA  90720

PO Box 3355

562-430-1467

Gettysburg, PA  17325

www.seecenter.org

800-942-2732

 

www.deafchildren.org

 


HEARING, SPEECH & LANG.

MENTAL RETARDATION

 

 

Speech Therapy Activities

The Arc of the United States

www.speechtx.com

1010 Wayne Avenue, Suite 650

 

Silver Spring, MD  20910

LEARNING DISABILITIES

301-565-3842

 

www.thearc.org

Dyslexia Research Institute

 

5746 Centerville Road

President’s Committee on Mental Retardation

Tallahassee, FL  32308

370 L’Engant Promenade SW Suite 701

850-893-2216

Washington DC  20447

dyslexia-add.org

202-619-0634

 

www.acd.dhhs.gov/programs/pcmr

International Dyslexia Association

 

8600 LaSalle Road

MUSCULAR DYSTROPHY

Chester Bldg., Suite 382

 

Baltimore, MD  21286

Muscular Dystrophy Association

410-296-0232

3300 East Sunrise Drive

www.interdys.org

Tucson, AZ  85718

 

800-572-1717

LD Online

www.mdausa.org

www.ldonline.org

 

 

PEDIATRIC ORTHOPEDICS

Learning Disabilities Assoc. of America

 

4156 Library Road

www.pediatric-orthopedics.com

Pittsburgh, PA  15234

 

412-341-1515

 

www.ldanatl/.org

SCOLIOSIS

 

 

National Center for Learning Disabilities

National Scoliosis Foundation

381 Park Avenue South, Suite 1401

5 Cabot Place

New York, NY  10016

Stoughton, MA  02072

888-575-7373

800-673-6922

www.ld.org

www.scoliosis.org

 

 

MENTAL RETARDATION

Scoliosis Research Society

 

611 East Wells Street

American Assoc. on Mental Retardation

Milwaukee, WI  53202

444 North Capitol Street NW, Suite 846

414-289-9107

Washington DC  20001

www.srs.org

800-424-3688

 

www.aamr.org

 

 

 

SEVERE MULTPLE DISABILITIES

VISUAL IMPAIRMENTS

 

 

Helen Keller National Center for Deaf-Blind

National Association for Visually Handicapped

111 Middle Neck Road

22 West 21st Street, 6th Floor

Sands Point, NY  11050

New York, NY  10010

516-944-8900

212-889-3141

www.helenkeller.org/national

www.navh.org

 

 

SPINA BIFIDA

National Braille Association

 

3 Townline Circle

Spina Bifida Association of America

Rochester, NY  14623

4590 MacArthur Blvd. NW Suite 250

585-427-8260

Washington DC  20007

www.nationalbraille.org

800-621-3141

 

www.sbaa.org

National Federation of the Blind

 

1800 Johnson Street

TRAUMATIC BRAIN INJURY (TBI)

Baltimore, MD  21230

 

410-659-9314

Brain Injury Assoc. of America

www.nfb.org

105 North Alfred Street

 

Alexandria, VA  22314

National Library Service for the Blind &

800-444-6443

Physically Handicapped

www.biaus.org

1291 Taylor Street NW

 

Washington DC  20011

Traumatic Brain Injury Resource Guide

202-707-5100

www.neuroskills.com

www.loc.gov/nsl

 

 

VISUAL IMPAIRMENTS

Prevent Blindness America

 

500 East Remington Road

American Foundation for the Blind

Schaumburg, IL  60173

11 Penn Plaza, Suite 300

800-331-2020

New York, NY  10011

www.preventblindness.org

800-232-5463

 

www.afb.org

Recording for the Blind & Dyslexic (RFB&D)

 

20 Roszel Road

American Printing House for the
Blind (APH)

Princeton, NJ  08540

PO Box 6085

609-452-0606

Louisville, KY

www.rfbd.org

40206

 

800-223-1839

 

www.aph.org

 

 

 

ACCESSIBILITY & COMMUNITY INCLUSION

Michigan’s Assistive Technology Resource

 

1023 South US Route 27

National Assoc. of Developmental Disab.

St. Johns, MI  48879

1234 Massachusetts Avenue NW Suite 103

800-274-7426

Washington DC  20005

www.matr.org

202-347-1234

 

www.naddc.org

BEHAVIOR & MENTAL HEALTH

 

 

National Council of Independent Living

American Academy of Child & Adolescent

1916 Wilson Blvd., Suite 209

Psychiatry (AACAP)

Arlington, CA  22201

703-525-3406

3615 Wisconsin Avenue NW

Washington DC  20016

www.ncil.org

202-966-7300

 

www.aacap.org

National Organization on Disability

 

910 16th Street NW, Suite 600

American Psychiatric Association (APA)

Washington DC  20006

1400 K Street NW

202-293-5960

Washington DC  20005

www.nod.org

888-357-7924

 

www.psych.org

ADAPTIVE TECHNOLOGY & EQUIPMENT

 

 

American Psychological Association (APA)

Abledata

750 First Street NE

8630 Fenton Street, Suite 950

Washington DC  20002

Silver Spring, MD  20910

800-374-2721

800-227-0216

www.apa.org

www.abledata.com

 

 

Association for Behavior Analysis (ABA)

Alliance for Technology Access

213 West Hall, Western Michigan University

2175 East Francisco Blvd., Suite L

1903 West Michigan Avenue

San Rafael, CA  94901

Kalamazoo, MI  49008

415-455-4575

616-387-8341

www.ataccess.org

www.wmich.edu/aba/

 

 

Independent Living Aids, Inc.

Internet Mental Health

200 Robbins Lane

www.mentalhealth.com

Jericho, NY  11753

 

800-537-2118

CHILD DEVELOPMENT & PEDIATRICS

www.independentliving.com

 

 

American Academy of Pediatrics (AAP)

 

141 Northwest Point Blvd.

 

Elk Grove Village, IL  60007

 

847-434-4000

 

www.aap.org

   

CHILD DEVELOPMENT & PEDIATRICS

FAMILY & SIBLING SUPPORTS

 

 

Society of Developmental & Beh. Pediatrics

Parent to Parent

19 Station Lane

c/o Beach Center on Families & Disability

Philadelphia, PA  19118

University of Kansas

215-248-9168

3111 Haworth Hall

www.sdbp.org

Lawrence, KS  66045

 

785-864-7600

Society for Dev. Pediatrics

www.beachcenter.org

PO Box 23836

 

Baltimore, MD  21203

FEDERAL AGENCIES

410-550-9446

 

 

National Information Center for Children &

EDUCATION

Youth with Disabilities (NICHCY)

 

PO Box 1492

Council for Exceptional Children (CEC)

Washington DC  20013

1110 North Glebe Road, Suite 300

800-695-0285

Arlington, VA  22201

www.nichcy.org

888-232-7733

 

www.cec.sped.org

Office of Special Education & Rehabilitative

 

Services (OSERS)

FAMILY & SIBLING SUPPORTS

US Department of Education

 

400 Maryland Avenue SW

Caring for the Special Child

Washington DC  20202

www.baby-place.com/disabilities.htm

202-205-5465

 

www.ed.gov/offices/OSERS

Exceptional Parent

 

65 East Route 4

FEEDING, GROWTH & NUTRITION

River Edge, NJ  07661

 

201-489-4111

American Academy of Allergy & Asthma &

www.eparent.com

Immunology

 

611 East Wells Street

Federation for Children with
Special Needs

Milwaukee, WI  53202

1135 Tremont Street, Suite 240

414-272-6071

Boston, MA  02120

www.aaaai.org

800-331-0688

 

www.fcsn.org

American Dietetic Association

 

216 West Jackson Blvd.

National Information Center for Children & Youth with

Chicago, IL  60606

Disabilities (NICHCY)

800-877-1600

PO Box 1492

www.eatright.org

Washington DC  20013

 

800-695-0285

Comeunity’s Resources for Feeding & Growth

www.nichcy.org

of Children

 

www.comeunity.com/premature/child/growth

 

 

FEEDING, GROWTH & NUTRITION

PHYSICAL THERAPY

 

 

Dysphagia Resource Center

American Physical Therapy Association

www.dysphagia.com

1111 North Fairfax Street

 

Alexandria, VA  22314

LEGAL ISSUES

800-999-2782

 

www.apta.org

American Bar Association on Children and the Law

 

740 15th Street NW

RECREATION AND SPORTS

Washington DC  20005

 

www.abanet.org/child/

American Alliance for Health, Physical

 

Education, Recreation & Dance

 

1900 Association Drive

American Civil Liberties Union (ACLU)

Reston, VA  20191

125 Broad Street

800-213-7193

New York, NY  10004

www.aahperd.org

212-549-2500

 

www.aclu.org

American Association of Adapted Sports Prog.

 

PO Box 538

Children’s Defense Fund (CFD)

Pine Lake, GA  30072

25 E Street NW

404-294-0070

Washington DC  20001

www.aaasp.org

202-628-8787

 

www.childrensdefense.org

Disabled Sports USA

 

451 Hungerford Drive, Suite 100

Disabilities Rights Education & Defense Fund

Rockville, MD  20850

2212 Sixth Street

301-271-0960

Berkeley, CA  94710

www.dsusa.org

510-644-2555

 

www.dredf.org

Girl Scouts of the USA

 

420 5th Avenue

National Association of Protection and

New York, NY  10018

Advocacy Systems (NAPAS)

800-478-7248

900 Second Street, Suite 211

www.girlscouts.org

Washington DC  20002

 

202-408-9514

National Center on Physical Activity

www.protectionandadvocacy.com

and Disability

 

1640 West Roosevelt Road

OCCUPATIONAL THERAPY

Chicago, IL  60608

 

800-900-8086

American Occupational Therapy Assoc.

www.ncpad.cc.uic.edu

4720 Montgomery Lane, PO Box 31220

 

Bethesda, MD  20824

 

301-652-2682

 

www.aota.org

 

 

 

RECREATION AND SPORTS

 

 

 

Special Olympics International

 

1325 G Street NW, Suite 500

 

Washington DC  20005

 

202-628-3630

 

www.specialolympics.org

 

 

 

United States Association of Blind Athletes

 

33 North Institute Street

 

Colorado Springs, CO  80903

 

719-630-0422

 

www.usaba.org

 

 

 

Wheelchair Sports, USA

 

3593 East Fountain Blvd., Suite L-1

 

Colorado Springs, CO  80910

 

719-574-1150

 

www.wsusa.org

 

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